Understanding
Post-Transplant Lymphoproliferative Disease
PTLD is one of the rare but serious complications that can happen after a transplant. Since PTLD is rare, information and support can be harder to find. But you are not alone.
- recognize the symptoms
- involve your transplant team when needed
- be prepared for diagnosis and treatment discussions
- find more resources
What is PTLD?
PTLD is when your lymphocytes grow out of control after a transplant.
Who is at risk for PTLD?
Anyone who is taking immunosuppressants after a transplant can develop PTLD.
What are the symptoms of PTLD?
PTLD can show up as many different symptoms. Symptoms should be checked by the transplant team.
How is PTLD diagnosed?
Your transplant team will look at biopsy and imaging test results. PTLD needs to be diagnosed and treated quickly.
What are the types of PTLD?
PTLD can be classified based on the affected lymphocyte type, EBV involvement, and the specific form or type of lymphoma present.
What can I do as a patient or caregiver?
Stay in touch with your transplant team. Let them know if there’s any change in how you’re feeling.
What types of treatments are there?
There are many types of treatment. The options available to you will depend on a few factors, including the type of PTLD you have and treatments you may have had before.
What can I do as a patient or caregiver?
There are different ways you can play an active role in PTLD care. Remember to be kind to yourself and to stay in touch with your transplant team.
What support and resources are there?
Each person's situation and needs will be different, but you don’t have to do it alone. There are people, organizations, and communities that want to help.
How can I talk to others about PTLD?
You can share this website or the downloads with the people around you.
PTLD is related to your transplant and immunosuppressants. Your transplant team needs to be aware so they can diagnose and treat PTLD quickly.
- you notice any new symptoms
- there’s a general change in how you are feeling
If you visit any healthcare provider other than your transplant team, tell them about your transplant and immunosuppressants. They may need to contact your transplant team.They may be able to reach your transplant team.
